TeleRare Health announced the launch of a service that provides virtual care appointments for individuals with rare diseases, focusing on diagnosis, disease assessment, and ongoing care.
The platform connects patients with expert clinicians and provides molecular diagnostics as well as care coordination and referral services. It also provides information about approved treatments for rare diseases and patient advocacy groups.
of The Minneapolis-based company aims to reduce diagnosis time.
„Significant progress has been made in the management of rare diseases,“ Dr. Alex Katz, medical geneticist and chief medical officer at TeleRare Health, said in a statement.
“However, approved treatments are available for only a small proportion of these diseases, and access to treatment remains an issue for too many patients. We work closely with patients with rare diseases. „We look forward to working with them to benefit from the available medicines and to help all other patients enroll.“ Provide patients with convenient video consultation symptom management that systematically focuses on detecting and avoiding potential escalation. ”
bigger trends
Approximately 25 to 30 million Americans suffering from a rare disease.
Organizations such as EveryLife Foundation health policy advocate Empowering the rare disease community, and some major pharmaceutical companies Many companies are also starting to include treatments for rare diseases in their portfolios, leveraging advances in technology such as AI to find cures for these diseases.